We now take credit card donations through PayPal and GiveSmartOKC.
Checks that you send should be made out to: The
Epilepsy Association of Oklahoma. Donations are fully tax deductible and will be
used to fund our programs:
1) Emergency Seizure Medication Assistance &
Discount Drug Cards 2) Education About Seizures For Schools, Communities &
Work Force 3) Monthly Newsletter 4) Website With Resources & Epilepsy
Facebook 5) Annual Epilepsy Camp & Health Fairs To Educate 6) Support
Groups Throughout Oklahoma
You May Also Donate By Check, Please Make Payable To:
Association of Oklahoma 11212 N. May Ave. Suite 108 Oklahoma City, OK.
Like Us on Facebook
Welcome to the Home of the
Epilepsy Foundation of Oklahoma
A tongue has NO bone but it can
BREAK a heart.
So, watch what you say...to someone
Our mission for the Epilepsy Foundation of Oklahoma is:
To lead the fight to overcome the challenges of living with epilepsy and to
accelerate therapies to stop seizures, find cures, and save lives.
“Knowledge is power, or so it is said.
Often times when receiving a diagnosis of disability it does not
feel very empowering.”
DOLLARS IN OKLAHOMA:
Emergency Seizure Medication Assistance & Discount Drug Cards
CDC Program - Education About Seizures For Schools & Nurses, Communities & Work Force
Annual Epilepsy Camp & Health Fairs To Educate
Support Groups Throughout Oklahoma
Website With Resources & Social Media
A – S – A – P A - Raise Awareness S - Service To Community A - Advance / Fundraising P – Participate
EPILEPSY – PREVENT, CONTROL & CURE EPILEPSY THROUGH SERVICES...
LET THE EPILEPSY ASSOCIATION/FOUNDATION OF OKLAHOMA HELP YOU!
Epilepsy is a condition that is not well understood and often not well addressed, despite being widely recognized
Epilepsy accounts for about $15.5 billion in direct costs (medical) and indirect costs (lost or reduced earnings and productivity) each year. Adults with epilepsy report worse mental health, more cognitive impairment, and barriers in social participation. People with epilepsy also experience health and social disparities, such as worse health-related quality of life and low socioeconomic status.
65 MILLION: Number of people around the world who have epilepsy.
3 MILLION: Number of people in the United States who have epilepsy.
1 IN 26 people in the United States will develop epilepsy at some point in their lifetime.
BETWEEN 4 AND 10 OUT OF 1,000: Number of people on earth who live with active seizures at any one time.
150,000: Number of new cases of epilepsy in the United States each year
ONE-THIRD: Number of people with epilepsy who live with uncontrollable seizures because no available treatment works for them.
6 OUT OF 10: Number of people with epilepsy where the cause is unknown.
You can’t swallow your tongue during a seizure. It's physically impossible.
You should NEVER force something into the mouth of someone having a seizure. Absolutely not! Forcing something into the mouth of someone having a seizure is a good way to chip teeth, cut gums, or even break someone's jaw. The correct first aid is simple. Just gently roll the person on one side, support their head, protect from injury, and make sure their breathing is okay.
DON'T restrain someone having a seizure. Most seizures end in seconds or a few minutes and will end on their own. You can protect the person from injury by following simple first-aid guidelines.
Epilepsy is NOT contagious. You simply can't catch epilepsy from another person.
Anyone can develop epilepsy. Seizures start for the first time in people over age 65 almost as often as it does in children. Seizures in the elderly are often the after effect of other health problems like stroke and heart disease.
Most people with epilepsy CAN DO the same things that people without epilepsy can do. However, some people with frequent seizures may not be able to work, drive, or may have problems in other parts of their life.
Even with today's medication, epilepsy CANNOT be cured. Epilepsy is a chronic medical problem that for many people can be successfully treated. Unfortunately, treatment doesn't work for everyone. AT LEAST 1 million people in the United States have uncontrolled epilepsy. There is still an urgent need for more research, better treatments and a cure.
Epilepsy is NOT rare. There are more than twice as many people with epilepsy in the U.S. as the number of people with cerebral palsy (500,000), muscular dystrophy (250,000), multiple sclerosis (350,000), and cystic fibrosis (30,000) combined. Epilepsy can occur as a single condition, or may be seen with other conditions affecting the brain, such as cerebral palsy, intellectual disability, autism, Alzheimer's, and traumatic brain injury.
You CAN die from epilepsy. While death in epilepsy doesn't happen frequently, epilepsy is a very serious condition and individuals do die from seizures. The most common cause of death is SUDEP or Sudden Unexpected Death in Epilepsy. While there is a lot we still don’t know about SUDEP, experts estimate that one out of every 1000 people with epilepsy die from SUDEP each year. People can also die from prolonged seizures (status epilepticus). About 22,000 to 42,000 deaths in the U.S. each year occur from these seizure emergencies.
What happens in a seizure may look different from one person to another. However, seizures are usually stereotypic, which means the same things or behaviors tend to occur in a person each time they have a seizure. The seizure behavior may be inappropriate for the time and place, but it is unlikely to cause harm to anyone.
People with epilepsy are usually not physically limited in what they can do. During and after a seizure, a person may have trouble moving or doing their usual activity. Some people may have trouble with physical abilities due to other neurological problems. Aside from these problems, a person who is not having a seizure is usually not limited in what they can do physically.
People with epilepsy are usually not physically limited in what they can do. During and after a seizure, a person may have trouble moving or doing their usual activity. Some people may have trouble with physical abilities due to other neurological problems. Aside from these problems, a person who is not having a seizure is usually not limited in what they can do physically
Authored by: Patricia O. Shafer, RN, MN | Joseph I. Sirven, MD on 7/2013
The Epilepsy Foundation's SUDEP Institute wants to motivate people with epilepsy to strive for their best possible seizure control to reduce their risks, speak with their health care team about SUDEP, and use our new dedicated #AimForZero hashtag to drive discussions.
THANK YOU FREDDY’S FOR YOUR PARTNERSHIP, WE APPRECIATE YOU!
WEBINAR SERIES EPILEPSY 101
Dates as follow
More information coming soon.
Content Coming Soon
CAN PROJECT IN OKLAHOMA
CAN PROJECT IN OKLAHOMA YES You CAN Be Apart Of This Project
Community Action Network Mission:
The core principle of the Community Action Network for Epilepsy is to establish volunteer groups across the country. The groups will support individuals living with epilepsy by enabling and advancing the mission of the Epilepsy Foundation. The Foundation’s mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. Involvement where you live and work creates partnerships that raise awareness about epilepsy and the programs the Foundation provides. You have the opportunity to support those with epilepsy by bringing programs and services directly into your communities. Whether it’s creating awareness, informing people about services, discovering new fundraising opportunities, or participating in innovation and public policy advocacy, these powerful Community Action Networks build lasting relationships in your neighborhood.
Jonathan’s Story: Promise to Livy
"Jonathan Scheinman leads the national Community Action Network program"
If You Would Like To Be Apart Of EPILEPSY AWARENESS In Oklahoma, Please Contact the Epilepsy Foundation Of Oklahoma Office To Learn More:
PROUD SPONSORS OF THE EPILEPSY FOUNDATION OF OKLAHOMA 2016
THANK YOU FOR YOUR SUPPORT!
THANK YOU TO OUR AMAZING PARTNERS FOR 2016 WE COULDN’T HAVE DO IT WITH OUT YOUR SUPPORT!
Thank you for your continued support of the Epilepsy Foundation of Oklahoma! It was nice to see many of you at our 4th Annual New Hope New Ginning Walk and our Epilepsy Symposium. We have many exciting things planned for 2017. We are continuing to raise epilepsy awareness, much has been done - but more is needed.
WE LAUNCHED OUR CAN IN THE SUMMER OF 2016 AND IT’S GOING STRONG, IF YOU WOULD LIKE TO BE APART OF OUR CAN GROUP PLEASE CONTACT THE EFO OFFICE.
The Community Action Network (CAN) has been created to establish volunteer groups in support of individuals impacted by epilepsy. CAN groups will create awareness, inform people about services, and reach out to local communities on behalf of the Epilepsy Foundation of Oklahoma. Join us and learn more on January 28, 2017!
DON’T FORGET YOUR END OF YEAR DONATION TO THE EPILEPSY FOUNDATION OF OKLAHOMA AND IT IS TAX DEDUCTIBLE, MAIL A CHECK OR PLEASE USE OUR DONATE NOW FROM OUR HOMEPAGE , THANK YOU AND GOD BLESS YOU FOR 2017.
Content coming soon.
Knowledge of Epilepsy and Risk Factors Survey
Knowledge of Epilepsy and Risk Factors Survey
To help us continue enhancing epilepsy.com, we are asking our users for a better understanding of what you know about the impact of epilepsy and seizures. Your answers to this survey will help us build a better website to help you manage your seizures.
Like most girls her age, Brynlee likes to play dress-up, play with dolls and play with her brothers and sisters. When Brynlee was 2 years old she began having seizures and was later diagnosed with epilepsy. Since that time she has been on 6 different anti-seizure medications and gone through numerous tests and hospitalizations and we still do not have effective seizure control. She has multiple types of seizures at night and during the day. We have decided to get Brynlee a service dog. The dog will alert us to seizures at night and help her if she has a seizure at school or away from home. The training of a service dog is time consuming and very expensive. Because of this we will be accepting sponsors and holding various fundraising events over the next few months. Thank you for your prayers, support and encouragement!
AMBUCS PARTNERING WITH THE EPILEPSY FOUNDATION OF OKLAHOMA
For more than a decade AMBUCS have provided Therapeutic AmTrykes, to our community. These specially designed cycles have provided therapeutic benefits to both children and adults, while enhancing their quality of life. AmTrykes can be hand and/or foot-powered and will accommodate riders of all sizes and ages. They help improve fitness,
coordination, increase self-esteem and, most importantly, are very fun to ride! Through the AMBUCS Veteran Initiative, we sponsor specially built AmTryke cycles and provide the opportunity of mobility and independence to disabled veterans.
The Edmond club is also active in building wheelchair ramps to make homes accessible. In the past we partnered with the city of Edmond to create a universal playground that can be used by all children regardless of disability. The playground is located in Mitch Park.
THE EPILEPSY FOUNDATION OF OKLAHOMA HAS PARTNERED WITH AMBUCS, WE’LL HELP PURCHASE AmTrykes FOR CHILDREN WITH EPILEPSY
TO LEARN MORE ABOUT THE AmTrykes PLEASE CONTACT SHELLY AT 405-314-7123
**IF YOU WOULD LIKE TO HELP SPONSOR A TRYKE PLEASE CONTACT JENNIAFER AT 405-463-0673**
UNITED DONORS IN THE WORKPLACE WITH OUR NATION’S TRUSTED HEALTH
BUILD CULTURES OF COMMUNITY INVOLVEMENT
FIND COMMUNITY HEALTH CHARITIES, SUPPORT THE CHARITIES YOU KNOW – LIKE –
“EPILEPSY ASSOCIATION OF OKLAHOMA”
CFC – COMBINED FEDERAL CAMPAIGN #27949
CFC IS THROUGH OUT THE COUNTRY
CHC – PUBLIC SECTOR CAMPAIGN #8007
Thank you Freddy's, they have opened the EAO fundraiser for all day. If you go to this location and mention I am here for the Epilepsy Association Fundraiser, they will donate 15% of your purchase to us and you dont need a flyer.
Epilepsy research received $129 million in federal funding in 2013.
That's $59 per person with epilepsy. There are more with EPILEPSY than
all the people with Multiple Sclerosis + Muscular Dystrophy +
Parkinson’s disease put together, but EPILEPSY only receives 31% of what
they receive in federal research funding. Our intent is certainly not to
take research funding from any other disease, because they all need more
support! We just want EPILEPSY to get a fairer share. We journey to D.C.
each year to join our Epilepsy Foundation in advocating for more $ for
research. Like and Share to show you want EPILEPSY to get a more equal
share. #EndEpilepsy — with Ryan Thomas.
Percentage of Adults With and Without Epilepsy
Who Have Difficulty Getting Health Carea
VNS MONTHLY CONFERENCE CALL
EPILEPSY ASSOCIAION OF OKLAHOMA
This is an AMAZING site for people with EPILEPSY. If you
have been recently diagnosed or been living with EPILEPSY for a
while, PLEASE visit this site. You're NOT alone.
Talk About It.org created by Greg Grunberg (star of LOVE BITES,
HEROES, ALIAS and FELICITY) unites Hollywood celebrities and top
health care experts to end the misperceptions and misunderstanding
about epilepsy and seizure disorders. Greg Grunberg, whose eldest
son has epilepsy, has dedicated his time, energy and passion to
working toward ending the stigma around epilepsy and bringing public
focus on the need to find a cure and to help give a voice to
people living with epilepsy. To get more people talking about