Helping Oklahomans with Epilepsy

 

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We now take credit card donations through PayPal and GiveSmartOKC.

Checks that you send should be made out to:
The Epilepsy Association of Oklahoma.
Donations are fully tax deductible and will be used to fund our programs:

1) Emergency Seizure Medication Assistance & Discount Drug Cards
2) Education About Seizures For Schools, Communities & Work Force
3) Monthly Newsletter
4) Website With Resources & Epilepsy Facebook
5) Annual Epilepsy Camp & Health Fairs To Educate
6) Support Groups Throughout Oklahoma



GiveSmartOKC
You May Also Donate By Check,
Please Make Payable To:

Epilepsy Association of Oklahoma
11212 N. May Ave. Suite 108
Oklahoma City, OK. 73120
   

 

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Welcome to the Home of the Epilepsy Foundation of Oklahoma

 
 
EPILEPSY & SEIZURES 24/7 HELPLINE
Our Toll-Free Helpline: 1-800-332-1000
(en Español 1-866-748-8008)
Calls are answered 24 hours a day, 7 days a week.
 



A tongue has NO bone but it can BREAK a heart.
So, watch what you say...to someone


Since 1978, the Epilepsy Association of Oklahoma has been incorporated as a nonprofit health agency with the mission of helping Oklahomans who have epilepsy and their families.

“Knowledge is power, or so it is said.
Often times when receiving a diagnosis of disability it does not feel very empowering.”

OUR MISSION STATEMENT
Our mission of the Epilepsy Foundation of Oklahoma is to:

A – S – A – P
A - Raise Awareness
S - Service To Community
A - Advance / Fundraising
P - Participate

  • Emergency Seizure Medication Assistance & Discount Drug Cards
  • Education About Seizures For Schools, Communities & Work Force
  • Office Staff & Monthly Newsletter
  • Website With Resources & Epilepsy Facebook
  • Annual Epilepsy Camp & Health Fairs To Educate
  • Support Groups Throughout Oklahoma

    EPILEPSY – PREVENT, CONTROL & CURE EPILEPSY THROUGH SERVICES...
    LET  THE EPILEPSY ASSOCIATION/FOUNDATION OF OKLAHOMA HELP YOU!




Epilepsy is a condition that is not well understood and often not well addressed, despite being widely recognized

Epilepsy accounts for about $15.5 billion in direct costs (medical) and indirect costs (lost or reduced earnings and productivity) each year. Adults with epilepsy report worse mental health, more cognitive impairment, and barriers in social participation. People with epilepsy also experience health and social disparities, such as worse health-related quality of life and low socioeconomic status.

  • 65 MILLION: Number of people around the world who have epilepsy.
  • 3 MILLION: Number of people in the United States who have epilepsy.
  • 1 IN 26 people in the United States will develop epilepsy at some point in their lifetime.
  • BETWEEN 4 AND 10 OUT OF 1,000: Number of people on earth who live with active seizures at any one time.
  • 150,000: Number of new cases of epilepsy in the United States each year
  • ONE-THIRD: Number of people with epilepsy who live with uncontrollable seizures because no available treatment works for them.
  • 6 OUT OF 10: Number of people with epilepsy where the cause is unknown.

    You can’t swallow your tongue during a seizure. It's physically impossible.

    You should NEVER force something into the mouth of someone having a seizure. Absolutely not! Forcing something into the mouth of someone having a seizure is a good way to chip teeth, cut gums, or even break someone's jaw. The correct first aid is simple. Just gently roll the person on one side, support their head, protect from injury, and make sure their breathing is okay.

    DON'T restrain someone having a seizure. Most seizures end in seconds or a few minutes and will end on their own. You can protect the person from injury by following simple first-aid guidelines.

    Epilepsy is NOT contagious. You simply can't catch epilepsy from another person.

    Anyone can develop epilepsy. Seizures start for the first time in people over age 65 almost as often as it does in children. Seizures in the elderly are often the after effect of other health problems like stroke and heart disease.

    Most people with epilepsy CAN DO the same things that people without epilepsy can do. However, some people with frequent seizures may not be able to work, drive, or may have problems in other parts of their life.

    Even with today's medication, epilepsy CANNOT be cured. Epilepsy is a chronic medical problem that for many people can be successfully treated. Unfortunately, treatment doesn't work for everyone. AT LEAST 1 million people in the United States have uncontrolled epilepsy. There is still an urgent need for more research, better treatments and a cure. 


    Epilepsy is NOT rare. There are more than twice as many people with epilepsy in the U.S. as the number of people with cerebral palsy (500,000), muscular dystrophy (250,000), multiple sclerosis (350,000), and cystic fibrosis (30,000) combined. Epilepsy can occur as a single condition, or may be seen with other conditions affecting the brain, such as cerebral palsy, intellectual disability, autism, Alzheimer's, and traumatic brain injury.


    You CAN die from epilepsy. While death in epilepsy doesn't happen frequently, epilepsy is a very serious condition and individuals do die from seizures. The most common cause of death is SUDEP or Sudden Unexpected Death in Epilepsy. While there is a lot we still don’t know about SUDEP, experts estimate that one out of every 1000 people with epilepsy die from SUDEP each year. People can also die from prolonged seizures (status epilepticus). About 22,000 to 42,000 deaths in the U.S. each year occur from these seizure emergencies.

    What happens in a seizure may look different from one person to another. However, seizures are usually stereotypic, which means the same things or behaviors tend to occur in a person each time they have a seizure. The seizure behavior may be inappropriate for the time and place, but it is unlikely to cause harm to anyone.
    People with epilepsy are usually not physically limited in what they can do. During and after a seizure, a person may have trouble moving or doing their usual activity. Some people may have trouble with physical abilities due to other neurological problems. Aside from these problems, a person who is not having a seizure is usually not limited in what they can do physically.

    People with epilepsy are usually not physically limited in what they can do. During and after a seizure, a person may have trouble moving or doing their usual activity. Some people may have trouble with physical abilities due to other neurological problems. Aside from these problems, a person who is not having a seizure is usually not limited in what they can do physically

    Authored by: Patricia O. Shafer, RN, MN | Joseph I. Sirven, MD on 7/2013



 

OKLAHOMA CITY SUPPORT GROUP MEETING



FREDDY'S FUNDRAISER


FUNDRAISER NIGHT AT FREDDY’S TO BENEFIT THE EPILEPSY ASSOCIATION OF OKLAHOMA 5 LOCATIONS:

WHEN: WEDNESDAY, SEPT. 14 FROM 5-9 PM

PONCA CITY: 2407 N. 14TH ST.

EDMOND: 1925 E. 2ND ST

OKC: 12900 N. PENN AVE.

MOORE: 1525 S. SERVICE RD.

NORMAN: 2401 W. MAIN ST.

PLEASE REMEMBER TO TELL YOUR CASHIER “YOU’RE HERE FOR THE FUNDRAISER NIGHT”

Freddy’s will donate 15% of purchases to your organization when a guest mentions “YOU’RE HERE FOR THE FUNDRAISER NIGHT”

THANK YOU FREDDY’S FOR YOUR PARTNERSHIP, WE APPRECIATE YOU!


CAN PROJECT IN OKLAHOMA


CAN PROJECT IN OKLAHOMA
 YES You CAN Be Apart Of This Project

Community Action Network  Mission:

The core principle of the Community Action Network for Epilepsy is to establish volunteer groups across the country. The groups will support individuals living with epilepsy by enabling and advancing the mission of the Epilepsy Foundation. The Foundation’s mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. Involvement where you live and work creates partnerships that raise awareness about epilepsy and the programs the Foundation provides. You have the opportunity to support those with epilepsy by bringing programs and services directly into your communities. Whether it’s creating awareness, informing people about services, discovering new fundraising opportunities, or participating in innovation and public policy advocacy, these powerful Community Action Networks build lasting relationships in your neighborhood.


Jonathan’s Story: Promise to Livy 

  

"Jonathan Scheinman leads the national Community Action Network program"

If You Would Like To Be Apart Of EPILEPSY AWARENESS In Oklahoma, Please Contact the Epilepsy Foundation Of Oklahoma Office To Learn More:

405-463-0673

 

 

Epilepsy Association of Oklahoma Merges With The Epilesy Foundation of America


Update from the Executive Director of the NEW "Epilepsy Foundation of Oklahoma"

Welcome and thank you for visiting the Epilepsy Foundation of Oklahoma Website, Newsletter and Facebook page. We are honored that you have joined us, and I hope you will find all the information you need here.

This year 2016, the Epilepsy Foundation of Oklahoma celebrated a great victory. After 38 years of operating independently we became a chapter of the Epilepsy Foundation of America. With their unwavering support and assistance we'll be able to make tremendous strides in our community.

In my role as Executive Director, I have the privilege of working with wonderful doctors and members of our community who strive to improve the lives of those living with epilepsy every day. I will continue my fight in raising AWARENESS, SERVICE to our community, our ADVANCEMENT in fundraising and PARTICIPATION in activities throughout the state, with the help and support of the Epilepsy Foundation of America.

We are committed to operating with an abundance of energy to bring our members information and referral services they need. We are passionate about educating the community about seizures and epilepsy, in order to reduce the stigma that many individuals face.

Thank you for your on going support throughout the years and always remember YOUR NOT ALONE and we're here to help.

I'm very excited for the future of the new Epilepsy Foundation of Oklahoma

Jenniafer Walters
Executive Director






PROUD SPONSORS OF THE EPILEPSY ASSOCIATION/FOUNDATION OF OKLAHOMA



THANK YOU FOR YOUR SUPPORT!



EPILEPSY CAMPAIGN


Share our video on your Facebook page and ask your family and friends to do the same.

I challenge each of you to make a video funny or personal, share your video with us.

A special THANK YOU to Lisa King & Brittany Foglesong for helping with the video.

And dont forget to nominate more people in your video challenge.




Knowledge of Epilepsy and Risk Factors Survey



Knowledge of Epilepsy and Risk Factors Survey


To help us continue enhancing epilepsy.com, we are asking our users for a better understanding of what you know about the impact of epilepsy and seizures. Your answers to this survey will help us build a better website to help you manage your seizures.

Take the survey »


A SERVICE DOG FOR BRYNLEE
Brynlee


Like most girls her age, Brynlee likes to play dress-up, play with dolls and play with her brothers and sisters. When Brynlee was 2 years old she began having seizures and was later diagnosed with epilepsy. Since that time she has been on 6 different anti-seizure medications and gone through numerous tests and hospitalizations and we still do not have effective seizure control. She has multiple types of seizures at night and during the day. We have decided to get Brynlee a service dog. The dog will alert us to seizures at night and help her if she has a seizure at school or away from home. The training of a service dog is time consuming and very expensive. Because of this we will be accepting sponsors and holding various fundraising events over the next few months. Thank you for your prayers, support and encouragement!
 
PLEASE HELP SPONSOR OR DONATE:
CLICK HERE


SOMETIMES I GET THE WIGGLES

DOES YOUR CHILD HAVE THE “WIGGLES”?



ONE OF OUR VERY OWN EPILEPSY ADVISORY MEMBER WROTE A BOOK
ON EPILEPSY, “GREAT JOB” ANDEE COOPER. IF  YOU WOULD LIKE TO
PURCHASE A BOOK PLEASE CLICK THE LINK BELOW.

Click Here To Order Her Book On Amazon 

 You can find information at www.AndeeCooper.com

PR2 SYSTEMS FUNDRAISING FOR THE EPILEPSY FOUNDATION OF OKLAHOMA

For more than a decade AMBUCS have provided Therapeutic AmTrykes, to our community. These specially designed cycles have provided therapeutic benefits to both children and adults, while enhancing their quality of life. AmTrykes can be hand and/or foot-powered and will accommodate riders of all sizes and ages. They help improve fitness, 
coordination, increase self-esteem and, most importantly, are very fun to ride! Through the AMBUCS Veteran Initiative, we sponsor specially built AmTryke cycles and provide the opportunity of mobility and independence to disabled veterans.
 
The Edmond club is also active in building wheelchair ramps to make homes accessible. In the past we partnered with the city of Edmond to create a universal playground that can be used by all children regardless of disability. The playground is located in Mitch Park.
 
THE EPILEPSY FOUNDATION OF OKLAHOMA HAS PARTNERED WITH AMBUCS, WE’LL HELP PURCHASE AmTrykes FOR CHILDREN WITH EPILEPSY
 
TO LEARN MORE ABOUT THE AmTrykes PLEASE CONTACT SHELLY AT 405-314-7123
 
**IF YOU WOULD LIKE TO HELP SPONSOR A TRYKE PLEASE CONTACT JENNIAFER AT 405-463-0673**
 
THANK YOU FOR YOUR HELP AND SUPPORT
JENNIAFER WALTERS, EXECUTIVE DIRECTOR




COMMUNITY HEALTH CHARITIES
UNITED DONORS IN THE WORKPLACE WITH OUR NATION’S TRUSTED HEALTH CHARITIES

BUILD CULTURES OF COMMUNITY INVOLVEMENT

FIND COMMUNITY HEALTH CHARITIES, SUPPORT THE CHARITIES YOU KNOW – LIKE –
 “EPILEPSY ASSOCIATION OF OKLAHOMA”

CFC – COMBINED FEDERAL CAMPAIGN #27949
CFC IS THROUGH OUT THE COUNTRY

CHC – PUBLIC SECTOR CAMPAIGN #8007
OKLAHOMA STATE

FREDDYS PHEOMENAL FUNDTRASERS

.

Thank you Freddy's, they have opened the EAO fundraiser for all day. If you go to this location and mention I am here for the Epilepsy Association Fundraiser, they will donate 15% of your purchase to us and you dont need a flyer.

(Click Image to open PDF)

END EPILEPSY

End Epilepsy


Epilepsy research received $129 million in federal funding in 2013. That's $59 per person with epilepsy. There are more with EPILEPSY than all the people with Multiple Sclerosis + Muscular Dystrophy + Parkinson’s disease put together, but EPILEPSY only receives 31% of what they receive in federal research funding. Our intent is certainly not to take research funding from any other disease, because they all need more support! We just want EPILEPSY to get a fairer share. We journey to D.C. each year to join our Epilepsy Foundation in advocating for more $ for research. Like and Share to show you want EPILEPSY to get a more equal share. #EndEpilepsy — with Ryan Thomas.



Percentage of Adults With and Without Epilepsy 
Who Have Difficulty Getting Health Carea





VNS MONTHLY CONFERENCE CALL

EPILEPSY ASSOCIAVNS monthly conference callION OF OKLAHOMA

 
Talk About It  This is an AMAZING site for people with EPILEPSY. If you have been recently diagnosed or been living with EPILEPSY for a while, PLEASE visit this site. You're NOT alone.

Talk About It.org created by Greg Grunberg (star of LOVE BITES, HEROES, ALIAS and FELICITY) unites Hollywood celebrities and top health care experts to end the misperceptions and misunderstanding about epilepsy and seizure disorders. Greg Grunberg, whose eldest son has epilepsy, has dedicated his time, energy and passion to working toward ending the stigma around epilepsy and bringing public focus on the need to find a cure and to help give a voice to people living with epilepsy. To get more people talking about epilepsy!