Helping Oklahomans with Epilepsy

 

What's New

 
 

Go To The Events Page For Details

[NUMO.CALENDAR: AGENDA(id=1)]

   

 

Donate Now

 
 

Your Donations Are Appreciated

We now take credit card donations through PayPal and GiveSmartOKC.

Checks that you send should be made out to:
The Epilepsy Association of Oklahoma.
Donations are fully tax deductible and will be used to fund our programs:

1) Emergency Seizure Medication Assistance & Discount Drug Cards
2) Education About Seizures For Schools, Communities & Work Force
3) Monthly Newsletter
4) Website With Resources & Epilepsy Facebook
5) Annual Epilepsy Camp & Health Fairs To Educate
6) Support Groups Throughout Oklahoma



GiveSmartOKC
You May Also Donate By Check,
Please Make Payable To:

Epilepsy Association of Oklahoma
11212 N. May Ave. Suite 108
Oklahoma City, OK. 73120
   

 

Facebook

 
 

Like Us on Facebook

   

 

 

Welcome to the Home of the Epilepsy Foundation of Oklahoma

 
 
EPILEPSY & SEIZURES 24/7 HELPLINE (CLICK HERE TO LEARN MORE)
Our Toll-Free Helpline: 1-800-332-1000
(en Español 1-866-748-8008)
Calls are answered 24 hours a day, 7 days a week.
 


EPILEPSY AWARENESS MONTH




A tongue has NO bone but it can BREAK a heart.
So, watch what you say...to someone

Our mission for the Epilepsy Foundation of Oklahoma is:

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy. Additionally, it is to accelerate therapies to stop seizures, find cures, and save lives. We are a national non-profit with nearly 50 local organizations throughout the United States and have led the fight against seizures since 1968. The Foundation is an unwavering ally for individuals and families impacted by epilepsy and seizures. The Foundation works to prevent, control, and cure epilepsy through community services; public education; federal and local advocacy; and supporting research into new treatments and therapies. The Foundation works to ensure that people with seizures have the opportunity to live their lives to their fullest potential.


“Knowledge is power, or so it is said.
Often times when receiving a diagnosis of disability it does not feel very empowering.”


  DOLLARS IN OKLAHOMA:

  • Emergency Seizure Medication Assistance & Discount Drug Cards
  • CDC Program - Education About Seizures For Schools & Nurses, Communities & Work Force
  • Annual Epilepsy Camp & Health Fairs To Educate
  • Epilepsy Literature
  • Support Groups Throughout Oklahoma
  • Website With Resources & Social Media
  • Monthly Newsletter
  • CAN Program

  • CAN MISSION:
    A – S – A – P
    A - Raise Awareness
    S - Service To Community 
    A - Advance / Fundraising
    P – Participate


    EPILEPSY – PREVENT, CONTROL & CURE EPILEPSY THROUGH SERVICES...
    LET  THE EPILEPSY ASSOCIATION/FOUNDATION OF OKLAHOMA HELP YOU!




Epilepsy is a condition that is not well understood and often not well addressed, despite being widely recognized

Epilepsy accounts for about $15.5 billion in direct costs (medical) and indirect costs (lost or reduced earnings and productivity) each year. Adults with epilepsy report worse mental health, more cognitive impairment, and barriers in social participation. People with epilepsy also experience health and social disparities, such as worse health-related quality of life and low socioeconomic status.

  • 65 MILLION: Number of people around the world who have epilepsy.
  • 3 MILLION: Number of people in the United States who have epilepsy.
  • 1 IN 26 people in the United States will develop epilepsy at some point in their lifetime.
  • BETWEEN 4 AND 10 OUT OF 1,000: Number of people on earth who live with active seizures at any one time.
  • 150,000: Number of new cases of epilepsy in the United States each year
  • ONE-THIRD: Number of people with epilepsy who live with uncontrollable seizures because no available treatment works for them.
  • 6 OUT OF 10: Number of people with epilepsy where the cause is unknown.

    You can’t swallow your tongue during a seizure. It's physically impossible.

    You should NEVER force something into the mouth of someone having a seizure. Absolutely not! Forcing something into the mouth of someone having a seizure is a good way to chip teeth, cut gums, or even break someone's jaw. The correct first aid is simple. Just gently roll the person on one side, support their head, protect from injury, and make sure their breathing is okay.

    DON'T restrain someone having a seizure. Most seizures end in seconds or a few minutes and will end on their own. You can protect the person from injury by following simple first-aid guidelines.

    Epilepsy is NOT contagious. You simply can't catch epilepsy from another person.

    Anyone can develop epilepsy. Seizures start for the first time in people over age 65 almost as often as it does in children. Seizures in the elderly are often the after effect of other health problems like stroke and heart disease.

    Most people with epilepsy CAN DO the same things that people without epilepsy can do. However, some people with frequent seizures may not be able to work, drive, or may have problems in other parts of their life.

    Even with today's medication, epilepsy CANNOT be cured. Epilepsy is a chronic medical problem that for many people can be successfully treated. Unfortunately, treatment doesn't work for everyone. AT LEAST 1 million people in the United States have uncontrolled epilepsy. There is still an urgent need for more research, better treatments and a cure. 


    Epilepsy is NOT rare. There are more than twice as many people with epilepsy in the U.S. as the number of people with cerebral palsy (500,000), muscular dystrophy (250,000), multiple sclerosis (350,000), and cystic fibrosis (30,000) combined. Epilepsy can occur as a single condition, or may be seen with other conditions affecting the brain, such as cerebral palsy, intellectual disability, autism, Alzheimer's, and traumatic brain injury.


    You CAN die from epilepsy. While death in epilepsy doesn't happen frequently, epilepsy is a very serious condition and individuals do die from seizures. The most common cause of death is SUDEP or Sudden Unexpected Death in Epilepsy. While there is a lot we still don’t know about SUDEP, experts estimate that one out of every 1000 people with epilepsy die from SUDEP each year. People can also die from prolonged seizures (status epilepticus). About 22,000 to 42,000 deaths in the U.S. each year occur from these seizure emergencies.

    What happens in a seizure may look different from one person to another. However, seizures are usually stereotypic, which means the same things or behaviors tend to occur in a person each time they have a seizure. The seizure behavior may be inappropriate for the time and place, but it is unlikely to cause harm to anyone.
    People with epilepsy are usually not physically limited in what they can do. During and after a seizure, a person may have trouble moving or doing their usual activity. Some people may have trouble with physical abilities due to other neurological problems. Aside from these problems, a person who is not having a seizure is usually not limited in what they can do physically.

    People with epilepsy are usually not physically limited in what they can do. During and after a seizure, a person may have trouble moving or doing their usual activity. Some people may have trouble with physical abilities due to other neurological problems. Aside from these problems, a person who is not having a seizure is usually not limited in what they can do physically

    Authored by: Patricia O. Shafer, RN, MN | Joseph I. Sirven, MD on 7/2013



EFO CAMPAIGN



*********************************************************

END OF THE YEAR CHARITABLE TAX DONATION 2017!

MAKE A $50 DONATION THROUGH OUR PAYPAL ACCOUNT OR MAIL

TO OUR OFFICE AND RECEIVE A TAX LETTER W/ONE OF OUR

EFO TUMBLER     http://okepilepsy.org/

*********************************************************





 

THANK YOU TO OUR PROUD SPONSORS WHO HELPED MAKE OUR EPILEPSY SYMPOSIUM 2017 POSSIBLE!
 











THANK YOU FOR YOUR SUPPORT!



EPILEPSY SUPPORT GROUP MEETING OKC

OKC Support group cancelled November and December, will start back up January, 2018.



Contact:

Epilepsy Foundation of Oklahoma’s office 405-463- 0673



#AIMFORZERO



Epilepsy.com Special Report

#AimForZero

 

The Epilepsy Foundation's SUDEP Institute wants to motivate people with epilepsy to strive for their best possible seizure control to reduce their risks, speak with their health care team about SUDEP, and use our new dedicated #AimForZero hashtag to drive discussions.

Find out more »

 

Join the #AimForZero Awareness Campaign »

Read the press release 



 

 

FREDDY'S FUNDRAISER


THANK YOU FREDDY’S FOR YOUR PARTNERSHIP, WE APPRECIATE YOU!

TULSA OILERS


The Tulsa Oilers are a professional ice hockey team based in Tulsa, Oklahoma, which plays in the ECHL. The Oilers played their home games at the Tulsa Convention Center until 2008 when they moved into the new BOK Center. For many years.

 

The Tulsa Oilers have partnered with the Epilepsy Foundation of Oklahoma, we are so honored for their support and help in the Epilepsy Community.

Please keep an eye out for upcoming information on our Oct. 28th game in Tulsa, it will focus around children and Purple Pumpkins with a contest to win prizes. Epilepsy Awareness Night at the Tulsa Oilers will be Nov. 4 with more information coming soon….there will be a special ticket for this game.

 

THANK YOU Tulsa Oilers!

https://tulsaoilers.com/



 

 

CAN PROJECT IN OKLAHOMA


CAN PROJECT IN OKLAHOMA
 YES You CAN Be Apart Of This Project

Community Action Network  Mission:

The core principle of the Community Action Network for Epilepsy is to establish volunteer groups across the country. The groups will support individuals living with epilepsy by enabling and advancing the mission of the Epilepsy Foundation. The Foundation’s mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. Involvement where you live and work creates partnerships that raise awareness about epilepsy and the programs the Foundation provides. You have the opportunity to support those with epilepsy by bringing programs and services directly into your communities. Whether it’s creating awareness, informing people about services, discovering new fundraising opportunities, or participating in innovation and public policy advocacy, these powerful Community Action Networks build lasting relationships in your neighborhood.


Jonathan’s Story: Promise to Livy 

  

"Jonathan Scheinman leads the national Community Action Network program"

If You Would Like To Be Apart Of EPILEPSY AWARENESS In Oklahoma, Please Contact the Epilepsy Foundation Of Oklahoma Office To Learn More:

405-463-0673

 

 

 






PROUD SPONSORS OF THE EPILEPSY FOUNDATION OF OKLAHOMA 2016





Ozarka Water

THANK YOU FOR YOUR SUPPORT!


THANK YOU TO OUR AMAZING PARTNERS FOR 2016 WE COULDN’T HAVE DO IT WITH OUT YOUR SUPPORT!
 
Thank you for your continued support of the Epilepsy Foundation of Oklahoma!  It was nice to see many of you at our 4th Annual New Hope New Ginning Walk and our Epilepsy Symposium. We have many exciting things planned for 2017. We are continuing to raise epilepsy awareness, much has been done - but more is needed.
 
 
WE LAUNCHED OUR CAN IN THE SUMMER OF 2016 AND IT’S GOING STRONG, IF YOU WOULD LIKE TO BE APART OF OUR CAN GROUP PLEASE CONTACT THE EFO OFFICE.
The Community Action Network (CAN) has been created to establish volunteer groups in support of individuals impacted by epilepsy. CAN groups will create awareness, inform people about services, and reach out to local communities on behalf of the Epilepsy Foundation of Oklahoma.  Join us and learn more on January 28, 2017
 
DON’T FORGET YOUR END OF YEAR DONATION TO THE EPILEPSY FOUNDATION OF OKLAHOMA AND IT IS TAX DEDUCTIBLE, MAIL A CHECK OR PLEASE USE OUR DONATE NOW FROM OUR HOMEPAGE , THANK YOU AND GOD BLESS YOU FOR 2017. 


KIDS CREW

 

The Epilepsy Foundation Kids Crew is growing. Nearly 100 kids from 30 states are now members. We created the Kids Crew to help kids raise epilepsy awareness, educate others, share their stories about epilepsy, and join in events. The program is free and is for ages 14 and under.
At the Kids Crew, we want kids to use their imagination and think creatively. We also recognize there are some who need a little help. We think every child has unique, special gifts that can be harnessed to improve peoples' lives. We want kids to come up with ideas that impact their communities. Doing so promotes teamwork, helps kids learn more about epilepsy, and gives them confidence. Our belief is that kids can use their talents to give back to others and to make a real difference. For more information and to join, click here.

More Than Epilepsy

What kids learn in the Kids Crew will help them in many areas of their lives. At the Crew, we respect others, never judge one another, and believe every kid is important. We also promote self-confidence and let kids know that they have the power to follow their dreams. As Hailey from the Kids Crew says, “Kids can change the world. So let’s do it now!”
For more information or to join, please click here



Knowledge of Epilepsy and Risk Factors Survey



Knowledge of Epilepsy and Risk Factors Survey


To help us continue enhancing epilepsy.com, we are asking our users for a better understanding of what you know about the impact of epilepsy and seizures. Your answers to this survey will help us build a better website to help you manage your seizures.

Take the survey »


Dr Matthews



Dr Tariq



 




COMMUNITY HEALTH CHARITIES
UNITED DONORS IN THE WORKPLACE WITH OUR NATION’S TRUSTED HEALTH CHARITIES

BUILD CULTURES OF COMMUNITY INVOLVEMENT

FIND COMMUNITY HEALTH CHARITIES, SUPPORT THE CHARITIES YOU KNOW – LIKE –
 “EPILEPSY ASSOCIATION OF OKLAHOMA”

CFC – COMBINED FEDERAL CAMPAIGN #27949
CFC IS THROUGH OUT THE COUNTRY

CHC – PUBLIC SECTOR CAMPAIGN #8007
OKLAHOMA STATE

 
 
END EPILEPSY

End Epilepsy


Epilepsy research received $129 million in federal funding in 2013. That's $59 per person with epilepsy. There are more with EPILEPSY than all the people with Multiple Sclerosis + Muscular Dystrophy + Parkinson’s disease put together, but EPILEPSY only receives 31% of what they receive in federal research funding. Our intent is certainly not to take research funding from any other disease, because they all need more support! We just want EPILEPSY to get a fairer share. We journey to D.C. each year to join our Epilepsy Foundation in advocating for more $ for research. Like and Share to show you want EPILEPSY to get a more equal share. #EndEpilepsy — with Ryan Thomas.



Percentage of Adults With and Without Epilepsy 
Who Have Difficulty Getting Health Carea





VNS MONTHLY CONFERENCE CALL

EPILEPSY ASSOCIAVNS monthly conference callION OF OKLAHOMA

 
Talk About It  This is an AMAZING site for people with EPILEPSY. If you have been recently diagnosed or been living with EPILEPSY for a while, PLEASE visit this site. You're NOT alone.

Talk About It.org created by Greg Grunberg (star of LOVE BITES, HEROES, ALIAS and FELICITY) unites Hollywood celebrities and top health care experts to end the misperceptions and misunderstanding about epilepsy and seizure disorders. Greg Grunberg, whose eldest son has epilepsy, has dedicated his time, energy and passion to working toward ending the stigma around epilepsy and bringing public focus on the need to find a cure and to help give a voice to people living with epilepsy. To get more people talking about epilepsy!